British judge makes controversial ruling in baby Charlie Gard case
- Author: Latoya Cobb Jul 20, 2017,
Jul 20, 2017, 0:27
Because Hirano has been developing a therapy that could potentially be used for Gard's specific brand of mitochondrial DNA depletion syndrome (in the past, the therapy has been used on similar conditions), the doctor has been in the United Kingdom this week to evaluate the boy and to determine whether Gard can withstand the treatment and the traveling that would be required to carry it out. They pushed back at that falsity and stormed out of the room.
The clinical meeting between USA doctor Michio Hirano and an global colleague of his, together with a United Kingdom expert in mitochondrial disease, an independent chair and the baby's mother, Connie Yates, is now over.
"This is the best scientific data we have", he told the judge last week, adding he was prepared to extrapolate the findings on patients with TK2 depletion to Charlie's genetic deficiency.
"Let them go!" protesters have been chanting all week long.
She said: "Our gorgeous baby boy is still stable". We are at his bedside and feel satisfied he is not suffering or in any pain.
Fighting on: Charlie Gard and his father.
But now they hoping Dr Hirano will present "new evidence relating to potential treatment for his condition" to the UK High Court.
It has never been tested on any human or animal. Like Charlie, doctors had told his parents there was little chance of survival.
But he was unable to persuade the London hospital's clinical team who believe it is kinder to turn off 11-month old Charlie's life support. A new MRI scan and an electroencephalogram (EEG) were done on the boy.
Neither the results, nor Dr Hirano's view of them, have been made public, but were central to yesterday's meeting of experts at Great Ormond Street Hospital (GOSH) in London. "Eventually, the last one was Dr. Hirano in New York City".
The meeting on Tuesday is being attended by the team now caring for Charlie, including a consultant paediatric intensivist, a consultant paediatric neurologist, a consultant in paediatric metabolic medicine, and a consultant neuroradiologist.
Even though GOSH acknowledges Charlie's parents are loving, it still thinks the government should be able to decide to pull the baby's life support even if the parents have the means to bring him elsewhere for treatment. It started at 7.30am and lasted until 1pm.
He is due to stage further hearings later this month following this week's specialist gathering.
Any legal eagles on the other side of the pond know the consequences of Gard and his parents being granted LPR status here vis-a-vis the family's right to take him to the USA for treatment? No dice: The doctors reportedly stayed put on their recommendation that life support be removed, with the hospital's lawyer calling the American doctor's prognosis "all very theoretical".
Charlie has survived three decisions to withdraw his ventilator, but was saved each time by appeals by his parents and interventions from Pope Francis and Donald Trump. He will give his verdict next Monday or Tuesday.